estranged family headache

Mesh? TVT? The Right to a Full Sex Life.

Trans-vaginal tape is the term used to described the plastic mesh placed during bladder surgery. It is basically a strip of unfinished plastic mesh just like below. It is placed around the bladder in a special procedure using long needles and brute strength. 

TVT is usually implanted to help secure the bladder against leaks of urine, it is used as a sling between the pelvic bone cavities. It was ‘designed’ to support and lift. It cuts off the flow of blood, urine and feeling to the area depending on it’s position. The loss of flow is intermittent, so one can go from calm to complete groin spasm in milliseconds.

So this, one second it’s fine then spasm, starts an onset of unbearable urgency. It gets so unreliable that eventually you are either unable to urinate or can’t stop urinating! Also urination becomes extremely painful. It is a similar situation with sexual performance.

 

Above is a picture of the mesh which was installed into me – as you can plainly see it is the same polypropylene that fishing nets are made from (link below). That is the same polypropylene which they say is dangerous for our environment and marine life (link below).

It has caused a lot of damage to the human beings it’s being installed into.

This is mesh plastic, very useful stuff but unfortunately toxic.

 

There is an alternative operation. There is no need to maim people. This plastic mesh surgery is just a new version of an old and well practised operation to help women after childbirth. The old operation was successful for hundreds of years but took more time.

In the past, Colposuspension was the most commonly performed operation for the treatment of stress urinary incontinence. This is a major operation that requires a general anaesthetic. The abdomen is opened and the bladder neck is lifted upwards by stitching the lower part of the front of the vagina to a ligament behind the pubic bone.

I was given TVT suspension during a hysterectomy to remove my womb and the plastic mesh was heat sealed inside me as you cannot sew stitches into it. This was all performed under general anaesthetic.

It was years before I clicked I’d been duped. Although there had been immediate problems things felt different as I no longer had a womb. So, you could say that I was fairly satisfied. Believing that my continual bladder and bowel problems were normal after a hysterectomy and to be fair, I was told they were normal by my GP.

However, approximately ten years after implant I started to have continual vomiting. They diagnosed Chronic Vomiting Sickness. But, numerous other, now called ‘mesh related’ symptoms appeared too, other auto immune problems. 

The Gynaecologist didn’t tell me TVT mesh may trigger a reaction with my body. I was not told it is a poison which leaches into flesh over time. I was not told it is only guaranteed for fifteen years and then they didn’t know what would happen! This is something to consider if you are offered plastic mesh for any invasive procedure.

Being around noise of almost any level began to hurt, affecting my ears and jaw. I started to not be able to attend my normal social events or even restaurants. Now, fifteen years later, I cannot eat food I used to because I can’t chew for long without it affecting my ears.

My ears now suffer from constant hypersensitivity.  I became reactive to nearly all my medications and unable to eat an ongoing amount of foods. Constant urinary tract infections with blood constantly present as well as other less describable things.

This has to be said, sorry I’ll say it as delicately as possible but basically my back end and front end started behaving erratically. It started to get difficult to sit comfortably. I kept getting cystitis without having had vigorous sex.  My GP sent me to the sexual health clinic although I told him I’d not been able to and even brought along the boyfriend!

They sent me back stating I did not have an STD. I officially complained then spent next few years having investigation after investigation. Not one consultant or hospital told me that it could be the TVT mesh. However, it is continually mentioned on my surgical notes.

Now I have learnt that it was a plastic mesh tape of device. I know that some plastics harden over time and can become brittle. Once the chemicals holding them together have been leached into the surrounding body the plastic mesh starts to disintegrate.

Fifteen years after implant I am rarely able to have sex. If I do the only position achievable would be missionary and then I cannot abide any pressure on or in my pelvis at all. Now, where is the joy in that?

Being a confident woman I liked being on top and used to enjoy the freedom that my extra flexibility gave me. However, it seems the TVT plastic mesh does not allow for too much movement so it’s lie back and stare at the ceiling.

Being so flexible was doable when I could keep my muscles strong. Not so if you are stuck at home waiting for the NHS to remove something they never should have placed in you to begin with. Muscle wastage is a real problem as walking is not possible. Typed through gritted teeth…

I am being truly honest when I tell you I was looking forward to years of guilt free, mature, steamy, sex as not having a womb I wouldn’t have to worry about contraception. Ahhh, how naive was I?

Anyone reading this should understand the kind of money involved in this plastic medical mesh industry. Last year the industry was worth 6.7 billion dollars. If you are considering mesh implant for hernia or pelvic surgery you will be told not to take any notice of people like me. You may even be told there is no alternative.

You will be told that the problem is minor and that the sufferers blow their symptoms up for attention. I know this as daily I read a Facebook page called Slingthemesh. It’s a support group. Generally it is full of heartbreaking stories of the mesh maimed.

Perspective patients come into the group, they tell us that they’re offered this treatment and what they have been told about us. I’m just going to tell you that there are millions of sufferers of TVT, TOT bladder sling, hernia mesh, pelvic prolapse mesh blanket, mesh tape and other new names they are thinking up of to stay ahead of the law suits.

You are not going to read very many personal stories about how the mesh has affected it’s victims. Most victims being too embarrassed or completely unaware of why we are having the problems! Some have won massive payouts and are not allowed to talk to public. Most victims don’t have a blog where they can share.

Having always had a varied and satisfying sex life it is a shock to be without it. Of course I get on with my life. There are much worse things. I’m thoughtful of the fellow souls in a similar position for the same or different reasons. But understanding it doesn’t mean I have to like it and put it with it in a gracious manner.

My membership to Kestrels goes unused and my right arm is killing me.

I’ve checked my rights and I’ve no right to sex but I have the right to express my sexuality. That’s nice but not helpful. In the mean time I’m thinking of doing a critique of my favourite porn videos… and the lack of choice from a female user of the industry.

Ah I just came across a blog page funded by super big organisations telling us their plans to dominate the hernia ‘industry’ be careful out there folks!

Thanks for reading.

http://www.toxicswatch.org/2008/11/toxic-leaching-from-polypropylene.html

https://www.memphisnet.net/product/4040/nets-seine-knotted-9  (industrial use mesh)

https://www.cbsnews.com/news/johnson-johnson-agrees-to-117m-settlement-over-pelvic-mesh-devices/

http://inthesetimes.com/article/13353/a_female_surgical_nightmare?

https://www.cbsnews.com/news/johnson-johnson-agrees-to-117m-settlement-over-pelvic-mesh-devices/

https://medicalxpress.com/news/2018-07-surgical-mesh-implants-autoimmune-disorders.html

https://www.drugdangers.com/transvaginal-mesh/brands/

https://wordpress.com/read/blogs/161987861/posts/29642

 

3 comments

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.